Foundation Fighting Blindness and Usher III Initiative Partner to Launch a Natural History Study for Usher Syndrome Type 3

Cindy Elden, co-founder and president of the Usher III Initiative, expressed enthusiasm about the next steps: “We are delighted to partner with the Foundation Fighting Blindness to launch a natural history study for USH3. This study is critical for the successful design of our clinical trial and for effective patient recruitment. By understanding the progression of the disease in a real-world context, we can tailor our approach to meet the needs of those affected.”

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First Ever Human Clinical Trials: A Step Toward Hope

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World Orphan Drug Congress - USA 2023