Your information is important to the success of USH3 research.
Join global patient registries
Track your inherited retinal disease
This registry is for those affected by inherited retinal diseases (IRD). The registry shares de-identified data with researchers and clinicians to aid in the search for treatments and cures. Members in the US also have access to a genetic testing study, which covers the cost of counseling and testing.
Join the largest Usher Syndrome registry
The Usher Syndrome Coalition aids the Usher community through USH Trust, the world's largest Usher syndrome registry. It provides a confidential and secure platform for individuals with Usher syndrome to sign up, connect, stay informed, and participate. Joining USH Trust ensures being notified first about clinical trials.
2. Get a free genetic test
Free Genetic Test
To accurately diagnose Usher II and Usher III, genotyping is crucial due to common clinical misdiagnoses. My Retina Tracker offers free genotyping, aiding patients in determining their specific Usher Syndrome type.
Why is genotyping important?
For Usher III treatment to advance to clinical trials, accurate patient identification is essential
crucial to build a compelling case for regulators, showcasing the necessity of treatment and our capability to identify willing and prepared individuals with Usher III.
