Giving Tuesday 2024 - A Step Closer to a Cure for Usher Syndrome Type 3

Each step you take with us is a step towards a brighter, more vibrant world.  Each step brings us closer to a cure for Usher 3 patients. Donate today and be the heartbeat of change. #OneStepCloser #TogetherForCure #HopeForUSH3

Dear Usher III Initiative Friends,

This Giving Tuesday, join us in taking one significant step closer to a cure for Usher Syndrome Type 3. Your support can propel us forward at a critical moment in our journey to conquer this rare genetic disorder that causes progressive hearing and vision loss.

Understanding Usher Syndrome Type 3

Usher Syndrome Type 3 presents in childhood or adolescence and gradually strips individuals of their ability to see and hear, drastically impacting daily life. There is currently no cure, but hope is on the horizon thanks to our recent scientific breakthroughs.

Progress - Phase 1 Clinical Trials are Underway

We are thrilled to inform you that the Usher III Initiative has initiated Phase 1 of our clinical trials in Australia, marking a monumental step towards developing a treatment that could potentially stop the progression of the disease. This phase 1 trial is crucial for verifying the safety of our treatment.

Natural History Study Collaboration

Through our partnership with the Foundation Fighting Blindness, we are conducting a comprehensive natural history study to gather essential clinical data on how Usher Syndrome Type 3 progresses in patients. This study is essential to refining our strategies and determining the best point of intervention for patients affected by this condition.

Our clinical trials and this groundbreaking study are underway in parallel, helping us move one step closer to a cure.

How You Can Help

Your donation today is more vital than ever. It will help us advance from Phase 1 to Phase 2, allowing us to test our treatment in Usher III patients and stop this debilitating disease.

Your Impact on Giving Tuesday

Please consider donating to the Usher III Initiative this Giving Tuesday. Your generosity will not only support the completion of Phase 1 but also enable us to continue our work in Phase 2. In our Phase 2 clinical trials, we aim to evaluate our novel compound's effectiveness, specifically working with Usher 3 patients. Together, we can make the dream of a cure a reality for those affected by Usher Syndrome Type 3.

Thank you for your unwavering support and commitment to our mission. Every step we take brings us closer to a world free of the challenges of Usher Syndrome Type 3.

With heartfelt thanks,

Cindy Elden

President and Co-founder, Usher III Initiative

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Annual Newsletter - 2024

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First Ever Human Clinical Trials: A Step Toward Hope