Dedicated to finding cures for deaf-blindness.

Together, we can find a treatment for Usher 3 Syndrome.

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Press play to see what life with Usher 3 syndrome is like.

What is Usher 3?

What is a life without hearing a vision?

Usher syndrome is a rare inherited disease that leads to progressive vision and hearing loss. USH3 is the rarest type that can end in complete blindness and deafness.

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Get Involved

Fighting rare diseases is a collaborative effort.

Collection of data is crucial to supporting Usher 3 research. Join the global patient registry database in order to support the scientists and researchers dedicated to finding a treatment.

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“Finding a cure for Usher 3 requires not only scientific innovation, but also unwavering support for disease research.”

— Cindy Elden, Founder of Usher III Initiative

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